FINALLY !!
I am seeing a light at the end of the legal hellish tunnel.
We were notified that the appeal with the state for my son's services will be held on April 1st.
I found that very appropriate somehow ;)
Our lawyer for the case we have against the school district called yesterday and I have to go sign the settlement papers for that on Monday.
The only issue now left hanging in the wind is if our insurance company will cover the IGF-1 medications that my son will need for growth.
The company that produces the medication is willing to send us a starter kit until we get that descision but I think we will hold off for a few reasons.
1. We will be going away for a cruise and a 3 day jaunt to New York City in April and I don't want to have to subject my sil or anyone else for that matter to having to inject him.
2. The possible side effects worry me and I want to be here to watch him closely if they should occur .. again it wouldn't be fair to ask someone else to take on that worry as well.
3. What if we start the medication with the "free starter kit" and then find out the insurances won't cover it ?
Now we have started something that financially we very likely would have to stop.
DAMN I hate that in this country even WITH insurance we still have to decide between mortgages and food or medications.
As a parent it SUCKS to have to potentially say to your child that you understand he wants to be taller and there is medication that can make that happen but you just may not be able to provide that.
After talking to "Michelle" from the company that produces the medication and discussing my concerns about starting the meds now when we know we will be away in a few weeks, she informed me that if we do wait until we get back that we may also have a descision from the insurance companies on coverage.
So now the dilemma is should we just wait for that word ? Or if they have to appeal it and it takes longer for an answer do we go ahead and start him on the "free starter kit" when we return ??
Tough choices and we are struggling with them.
Thursday, March 20, 2008
Thursday, March 13, 2008
Click .... click click click ...
We are playing whats that sound ?!?!
While I'm not sure if my Mormon friends will understand how unsettling that sound can be on a night when the temperatures took a dive in the month of March but I'm betting my Minnesota and PA friends can relate to it.
Think .. cold ... morning .. starting your car .
Click .. click click click .....
Thank God I never let that AAA membership expire.
Off to replace what needs replacing.
Have you guessed it yet ?
While I'm not sure if my Mormon friends will understand how unsettling that sound can be on a night when the temperatures took a dive in the month of March but I'm betting my Minnesota and PA friends can relate to it.
Think .. cold ... morning .. starting your car .
Click .. click click click .....
Thank God I never let that AAA membership expire.
Off to replace what needs replacing.
Have you guessed it yet ?
Saturday, March 8, 2008
Aerosmith for my sis
I have added some of my favorite Aerosmith songs for my sister.
I sent her the link to this blog today and I will be shocked if she shows up , reads it and then actually posts a reply on it.
If she does show I thought I would give her some music that may keep here long enough to read the blog.
She is sooo not the message board/blog type.
Sooooo will she post a reply ??
Edited to add .... I had to start off with the "Garth" song first. The song seems to have been written for her and she will understand why it's here ;)
I sent her the link to this blog today and I will be shocked if she shows up , reads it and then actually posts a reply on it.
If she does show I thought I would give her some music that may keep here long enough to read the blog.
She is sooo not the message board/blog type.
Sooooo will she post a reply ??
Edited to add .... I had to start off with the "Garth" song first. The song seems to have been written for her and she will understand why it's here ;)
The ups and downs
Lately my life is just an up and down mix of dramas.
Down Dramas :
1. I totally misunderstood my youngest sons test results concerning the Growth Hormone Stimulation test. While he overly produces Growth Hormone he does not produce IGF-1 which gives him a diagnosis of Primary IGFD.( it's googleable )
OK .. now that you read that I'm sure you can relate to my misunderstanding.
The "cure" itself may be considered by most folks worse than being of "short stature" but so far it means more to my son to be taller and if it's important to him then we owe it to him to see if it's possible.
2 injections a day for years isn't a pretty thought but the only solution at the moment that exists.
His Autism diagnosis already presents challenges for him that the rest of us don't have to live with ... hopefully this diagnosis won't add to that in the long run.
Time will tell, the Doctor has started the battle of the insurance company and I am thankful that for now that fell in her lap.
One more legal battle for me this year was not on my agenda so I really really hope she can handle this one.
2. Battling my School district and the Medical Access Doctors to provide the services my son needs has been drama filled for sure.
Taking on 2 legal battles at the same time is mentally draining.
Personally I want them both to just end but apparantly I am the only one in a hurry.
3. Random crazy people over the last year have added to the dramas.
Well some were not so random but their acts and the consequences of them have been.
The Domino effect has been intersting to observe.
What shakes me more than anything is that I am not confidant that the drama those acts created is over. Why do I always feel the random crazy person still wants the last word ?
Perhaps because they are indeed crazy and can't ever be trusted 100% again.
Up Dramas:
1. None of the above down dramas are or have been fatal or terminal. For that I am EXTREMELY Thankful.
2.Husband is comfortable in his job now and doing well.
3. Going cruising with some good friends.
4. Hearing the song Jack and Diane in the middle of the day at work and knowing that I have to call another good friend and bust her butt about it.
5. Having a teenager that seems happy with himself and not into the dramas many teenagers seem to get into. Sure he has his struggles, school work this year has not been a picnic but I am proud that he is a respectful kid that avoids getting into trouble. AMEN ! Yesterday he declared he is considering studying Criminal Justice.
Ok now that scares me but it's nice to see he's thinking beyond his latest Xbox score.
I appreciate the fact that everyone has dramas in their life. Some way worse than mine, but the saying what doesn't kill us makes us stronger .. has never had more meaning to me than it has this year !
That said .. it's been the friends and family that have seen me through all of them and that my fellow bloggers is a definitely an UP !
Down Dramas :
1. I totally misunderstood my youngest sons test results concerning the Growth Hormone Stimulation test. While he overly produces Growth Hormone he does not produce IGF-1 which gives him a diagnosis of Primary IGFD.( it's googleable )
OK .. now that you read that I'm sure you can relate to my misunderstanding.
The "cure" itself may be considered by most folks worse than being of "short stature" but so far it means more to my son to be taller and if it's important to him then we owe it to him to see if it's possible.
2 injections a day for years isn't a pretty thought but the only solution at the moment that exists.
His Autism diagnosis already presents challenges for him that the rest of us don't have to live with ... hopefully this diagnosis won't add to that in the long run.
Time will tell, the Doctor has started the battle of the insurance company and I am thankful that for now that fell in her lap.
One more legal battle for me this year was not on my agenda so I really really hope she can handle this one.
2. Battling my School district and the Medical Access Doctors to provide the services my son needs has been drama filled for sure.
Taking on 2 legal battles at the same time is mentally draining.
Personally I want them both to just end but apparantly I am the only one in a hurry.
3. Random crazy people over the last year have added to the dramas.
Well some were not so random but their acts and the consequences of them have been.
The Domino effect has been intersting to observe.
What shakes me more than anything is that I am not confidant that the drama those acts created is over. Why do I always feel the random crazy person still wants the last word ?
Perhaps because they are indeed crazy and can't ever be trusted 100% again.
Up Dramas:
1. None of the above down dramas are or have been fatal or terminal. For that I am EXTREMELY Thankful.
2.Husband is comfortable in his job now and doing well.
3. Going cruising with some good friends.
4. Hearing the song Jack and Diane in the middle of the day at work and knowing that I have to call another good friend and bust her butt about it.
5. Having a teenager that seems happy with himself and not into the dramas many teenagers seem to get into. Sure he has his struggles, school work this year has not been a picnic but I am proud that he is a respectful kid that avoids getting into trouble. AMEN ! Yesterday he declared he is considering studying Criminal Justice.
Ok now that scares me but it's nice to see he's thinking beyond his latest Xbox score.
I appreciate the fact that everyone has dramas in their life. Some way worse than mine, but the saying what doesn't kill us makes us stronger .. has never had more meaning to me than it has this year !
That said .. it's been the friends and family that have seen me through all of them and that my fellow bloggers is a definitely an UP !
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